Linking Process of the Revised Cystic Fibrosis Questionnaire within the Scope of the International Classification of Functioning, Disability and Health

Abstract

Purpose: Health outcome measures are standardly linked with the International Classification of Functioning, Disability, and Health (ICF) using a method called "linking rules". This study aims to evaluate the Cystic Fibrosis Questionnaire-Revised (CFQ-R), which is the most commonly used questionnaire to evaluate the quality of life in cystic fibrosis, for children (CFQ-R6-11, CFQ-R12-13), adolescent/ adult (CFQ-R14+) and parent (CFQ-R-parent) questionnaires are linked within the scope of ICF.<br /> Methods: Each items of the CFO-R child (6-11,12-13), adolescent/adults (14+) and parents forms was linked with the ICF by three independent researchers according to Cieze's rules. The researchers' degree of agreement was calculated using the kappa coefficient.<br /> Results: The CFQ-R-parent form was found to include body functions 46% (n=26), activities and participation 34% (n=19), and environmental factors 11% (n=6). The CFQ-R6-11 form was found to include body functions in 40% (n=19), activities and participation in 34% (n=16), and environmental factors in 19% (n=9). It was found that the CFQ-R12-13 form included body functions in 40% (n=19), activities and participation in 34% (n=16), and environmental factors in 19% (n=9). The CFQ-R14+ form was found to include body functions 43% (n=29), activities and participation 37% (n=25) and environmental factors 7% (n=5).<br /> Conclusion: In the CFQ-R child, adolescent/adult, and parent forms, body functions are the category most associated with the ICF. Environmental factors were inadequately identified within the questionnaires. This content comparison showed the content and nature of each questionnaire, providing insight into the scope of the individual's functionality. Additionally, it can be said that criteria that evaluate environmental factors are needed to evaluate CF holistically.